Readings
We asked our speakers to recommend readings that they think would speak to the theme of Long Covid and Society. Some of these texts are meant as provocations and serve as basis for our discussions on April 20. You can find the PDFs and links below.
Some Texts
If you have any other suggestions, please feel free to reach out!
- Cynthia Adinig. “One New Long COVID Case Every Minute in the United States“. CYNAERA.
- Cynthia Adinig. “Intimate Partner Violence Risk in Infection-Associated Chronic Conditions: The RAVYNS™ Projection Model“. CYNAERA.
- Ziyad Al-Aly et al. 2024. Long COVID science, research and policy” Nature Medicine.
- Larry Au, Cristian Capotescu, Gil Eyal, and Gabrielle Finestone. 2022. “Long covid and medical gaslighting: Dismissal, delayed diagnosis, and deferred treatment“. SSM-Qualitative Research in Health.
- Alba Azola and Emily Mendenhall. 2026. “The Current Culture of Medicine Is Failing People With Long COVID“. Science Politics.
- BCS Alliance. “BIPOC Health Advocacy Guidebook“.
- Tony Bernhard. 2018. How to Be Sick (Second Edition): A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers.
- de Campos, A.S. et al. (2024). Biosocial Technical Systems: An Emerging Approach to Analyse Responses to Novel Diseases. In: Rezaei, N. (eds) The COVID-19 Aftermath. Advances in Experimental Medicine and Biology, vol 1458. Springer, Cham. https://doi.org/10.1007/978-3-031-61943-4_20
- Sica de Campos, A., Pamplona da Costa, J., and Poker, J. (2025). Chapter 5: COVID-19 in the Brazilian context: factors influencing preventive measures in pandemic response. In COVID-19 Responses in Cultural and Political Context, Cheltenham, UK: Edward Elgar Publishing. available from: < https://doi.org/10.4337/9781035346301.00010>
- Dominique Grandjean et al. 2022. “Screening for SARS-CoV-2 Persistence in Long COVID Patients using Sniffer Dogs and Scents from Axillary Sweats Samples” Journal of Clinical Trials.
- Flora Cornish et al. 2025. “The erasure of infection-associated chronic conditions: Critical interpretive synthesis of literature on healthcare for long COVID and related conditions in Brazil“. Global Public Health.
- Karra Eloff. 2023. The Chronic Pain Couple: How to be a joyful partner & have a remarkable relationship in spite of chronic pain.
- Wes Ely et al. 2024. “Long Covid Defined“. New England Journal of Medicine.
- Gil Eyal, Larry Au, and Cristian Capotescu. 2024. “Trust is a Verb!: A Critical Reconstruction of the Sociological Theory of Trust“. Sociologica.
- Global Feminisms Project. 2022. “Long COVID Interviews“.
- Tamara McClintock Greenberg. 2012. When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support.
- Vox Jo Hsu et al. 2025. “Patients as knowledge partners in the context of complex chronic conditions“. Medical Humanities.
- Renan Gonçalves Leonel da Silva et al. 2025. “Contested Illness and Alternative Expertise Networks in Global Health: Post-COVID Syndrome in Brazil”. Sociology of Health & Illness.
- James C. Jackson. 2023. Clearing the Fog: From Surviving to Thriving with Long Covid―A Practical Guide.
- Elijah Kindred et al. 2025. “Designing for trustworthiness and research reciprocity: An example from the Illinois research network hub in the NIH RECOVER adult cohort study“. Journal of Clinical and Translational Science.
- Phillip Hoover. 2025. “You know someone with Long COVID. They need you to ask about it genuinely.” The Sick Times.
- Aaron Lee et al. 2017. “Family Members’ Experiences Supporting Adults with Chronic Illness: A National Survey“. Families, Systems, & Health.
- Cédric Lemogne et al. 2024. “National committee statement as a missed opportunity to acknowledge the relevance of a biopsychosocial approach in understanding long COVID.” Journal of Psychosomatic Research.
- Barbara Mantel. 2024. “Long Covid explanation in new study possibly paves way for tests and treatments“. NBC News.
- Madeline Ofina. 2020. Illness in the Family (podcast).
- Amy D. Proal. 2023. “SARS-CoV-2 reservoir in post-acute sequelae of COVID-19 (PASC)“. Nature Immunology.
- Emily Lim Rogers. 2025. “Lesbian AIDS: An Illness of One’s Own?” Signs.
- Paige Sweet. 2024. “Clustered vulnerabilities: The unequal effects of COVID-19 on domestic violence“. American Sociological Review.
- Emily Mendenhall. 2025. “Long COVID and the Rise of Digital Patient Activism“. Current History.
- Emily Mendenhall, Shreeja Banerjee, and Ayo Wahlberg. 2025. “Interembodiment among Long Haulers and their carers“. Social Science & Medicine.
- Sarah Ann Singer. 2026. The Patient Empowerment Paradox. University of South Carolina Press.
- Ed Yong. 2023. “Fatigue can shatter a person”. The Atlantic.
- Johanna Hedva. 2020. “Notes on Activism (AKA Notes on Failure)” in How to Tell When We Will Die: On Pain, Disability, and Doom.
- Julia Moore Vogel. 2025. “5 Years Since the COVID-19 Pandemic, Millions Like Me Are Still Sick”. US News & World Report.
Long Covid & Society 